Our first son Jimmy was born with a unilateral cleft lip and palate. We didn't really know a thing about what a cleft was until he surprised us the day of his birth with his wide smile. After things settled down a bit after his birth and we were home from the hospital, I dove into researching online about raising a cleft affected baby. I was so grateful to others that posted their experiences, shared pictures and advice online. We were so lost to begin with, and those little glimples into the future that we got from other's experiences really helped a lot and comforted our hearts and minds. We still have quite a road ahead of us, but I wanted to be able to compile pictures and experiences into one web page, so I created this one, "cleft notes". Hopefully it can be of assistance to any other families out there learning about a cleft, just as we too were reached out to.
-Jimmy's Mom
4 comments:
Thanks so much for your comment on my blog. It is so nice to know that there are others families that are going through the same thing. We are coming up on the orthodontic phase and it is kinda scary. Thanks again for your comment, and kudos for the awesome blog about clefts!
Thank you for posting your information and story, it's nice to be able to connect with another :)
Thank you, we just got an ultrasound today that showed a cleft palette.
This blog is very helpful.
Your blog is awesome! Our son, Jack Danger, was born with incomplete bilateral cleft lip and submuc. palate/bifid uvula. We knew at the 20-week ultrasound, and he actually came out better than diagnosed. Anyway, I have a blog similar to the ones you list on the right side of your home page. I don't know what your standards for referalls to other blogs are, but I'd love to be of service or support to any family who'd like it. My blog is "whattheflipwithlindz" and we are the Smolko family: Mike, Lindz, Amelie and Jack. Thank you!
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